One year ago, I wrote "Letting Go" Series Introduction. In my post, I wrote, "It is essential for us– not just parents of children with...

More and more often recently, I feel like a fish out of water everywhere I go. John Steinbeck once wrote, “In utter loneliness a writer...

A couple of years ago, I was trying to be more purposeful about prayer in my daily life. The truth is I have always struggled with...

For a moment I was weightless. Suspended in the beautiful, clear, turquoise water of the Caribbean, I felt free. The water of the...

In my nightmares, it is a place of gothic horror-- eerie, narrow hallways leading to an ominous waiting room, at the end of which is a...

April has been a month full of stress. First I came down with Shingles. I had mild pain from the rash along my back and in my eye, but...

I was jolted awake tonight in a panic attack. A scene from Daniel’s time in the hospital kept playing over and over again in my head....

Something has been weighing on my heart recently. For the last few years, I have been heavily documenting my life and the lives of my...

I was sitting alone in the house the other day holding Daniel. The other two kids were outside with my dad, and Daniel was having a...

I have been sharing on this blog for about 9 months. The scope and purpose of my blog has evolved and changed over time. At first this...

In my journey with Daniel, I have often felt invisible. It is unfathomable that the world continues to turn while our world revolves...

Brenley has Hypoplastic Left Heart Syndrome with absent left ventricle. “Hypoplastic” means underdeveloped or incomplete. Many babies...

Meet Ace. His official diagnosis is: Congenital bradycardia; Atrioventricular canal (common atrium with small VSD closing); subaortic...