One year ago, I wrote "Letting Go" Series Introduction. In my post, I wrote, "It is essential for us– not just parents of children with health problems, but ...

More and more often recently, I feel like a fish out of water everywhere I go. John Steinbeck once wrote, “In utter loneliness a writer tries to explain the ...

A couple of years ago, I was trying to be more purposeful about prayer in my daily life. The truth is I have always struggled with prayer, and I felt like I ...

For a moment I was weightless. Suspended in the beautiful, clear, turquoise water of the Caribbean, I felt free. The water of the Caribbean is very salty, wh...

In my nightmares, it is a place of gothic horror-- eerie, narrow hallways leading to an ominous waiting room, at the end of which is a doorway leading to dar...

April has been a month full of stress. First I came down with Shingles. I had mild pain from the rash along my back and in my eye, but the real crisis was how...

I was jolted awake tonight in a panic attack. A scene from Daniel’s time in the hospital kept playing over and over again in my head. Even now, sitting here w...

I was sitting alone in the house the other day holding Daniel. The other two kids were outside with my dad, and Daniel was having a really fussy day. I had f...

I have been sharing on this blog for about 9 months. The scope and purpose of my blog has evolved and changed over time. At first this blog served as a way t...

In my journey with Daniel, I have often felt invisible. It is unfathomable that the world continues to turn while our world revolves around the PICU. There a...

Brenley has Hypoplastic Left Heart Syndrome with absent left ventricle. “Hypoplastic” means underdeveloped or incomplete. Many babies like Daniel with HLHS h...

Meet Ace. His official diagnosis is: Congenital bradycardia; Atrioventricular canal (common atrium with small VSD closing); subaortic obstruction with Hypopl...

In this journey with Daniel, I have met dozens of inspiring mothers along the way. They are mothers of medically complex children. They have surrendered thei...

On April 4, 2018, I learned the truth: I am a heart mom. I am going to give birth to a baby with half a heart. For days I had convinced myself that it wasn’t...

I thought it might be a good idea to answer the most frequent questions people ask me about Daniel’s journey with HLHS. As you read, if you have a question, ...

Sometimes people think that, as Christians, we have to be manically happy all the time in times of struggle. We have learned the verse, “Count it all joy, my...

I have so much to write about and so little time to do it. I have at least 10 blog posts planned out in my head, but I haven’t had a spare moment to get them...