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Peace of Mind and Heart
April has been a month full of stress. First I came down with Shingles. I had mild pain from the rash along my back and in my eye, but...
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Staci Geiger
- Mar 30, 2019
- 6 min
PTSD
I was jolted awake tonight in a panic attack. A scene from Daniel’s time in the hospital kept playing over and over again in my head....
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Staci Geiger
- Feb 20, 2019
- 11 min
State of the Geigers– February 2019
I have been sharing on this blog for about 9 months. The scope and purpose of my blog has evolved and changed over time. At first this...
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Staci Geiger
- Feb 3, 2019
- 5 min
Letting Go of Denial
On April 4, 2018, I learned the truth: I am a heart mom. I am going to give birth to a baby with half a heart. For days I had convinced...
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Staci Geiger
- Jan 28, 2019
- 9 min
Q&A
I thought it might be a good idea to answer the most frequent questions people ask me about Daniel’s journey with HLHS. As you read, if...
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Staci Geiger
- Jan 13, 2019
- 7 min
Weeks…3-4?…Updates
I have so much to write about and so little time to do it. I have at least 10 blog posts planned out in my head, but I haven’t had a...
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Staci Geiger
- Dec 29, 2018
- 6 min
Post-Glenn: Week 1 @ Home
What. A. Week. I am so tired, but I’m not complaining. I’m so happy to be home. Even more amazing– we were home for Christmas! The first...
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Staci Geiger
- Dec 12, 2018
- 3 min
Daniel Updates, 12/12/18
We have had a huge couple of days!! Daniel has been weaned off his IV drips; he is totally off milrinone and precedex! He also restarted...
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Staci Geiger
- Dec 11, 2018
- 8 min
Survival Mode
Today is day 46 in the hospital. Daniel was admitted on October 25th. He had a heart cath procedure in which they measured the pressures...
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Staci Geiger
- Dec 2, 2018
- 5 min
How much is too much?
Daniel has had a really crazy few weeks. He had his Glenn surgery early. He developed a coarctation of his aorta, which sent him into...
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Staci Geiger
- Nov 30, 2018
- 6 min
For TJ, with love
One of the most wonderful and most painful things about this journey with Daniel is getting to know other people with medically complex...
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Staci Geiger
- Nov 20, 2018
- 5 min
Daniel Updates 11/20/18
I’m living in a nightmare from which I can’t wake up. Daniel is struggling. He can’t catch a break. It seems like he has hit every bump...
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Staci Geiger
- Nov 11, 2018
- 9 min
Setbacks and PTSD
It has taken me 3 days to be in a place where I felt that I could write about what happened Thursday night. Even now I don’t feel...
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Staci Geiger
- Nov 8, 2018
- 4 min
Post-Glenn updates, day 2
Daniel received his Glenn surgery on Tuesday, November 6th. They took him to the OR around 10 a.m. and started surgery around 12:30 p.m....
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Staci Geiger
- Oct 31, 2018
- 13 min
Daniel updates–CMH, round 2
I can’t believe this, but we are here again. For the last seven weeks at home, this hospital became a distant memory, remembered only in...
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Staci Geiger
- Oct 8, 2018
- 7 min
Matters of the Heart
Tomorrow is the big day. Daniel will be getting his Glenn. They will take him between 9:00 a.m. and 10 a.m. On his CT scan today, we got...
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Staci Geiger
- Oct 4, 2018
- 5 min
Week 4 @ Home Updates
We have had another uneventful week at home, thank God! Daniel’s weight gain has really taken off this week. He is up to 3.46 kilograms,...
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Staci Geiger
- Sep 26, 2018
- 4 min
Weeks 2-3 @ Home
It has been a few weeks since I have posted Daniel updates. I feel like I am running around like a manic chicken with my head cut off...
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Staci Geiger
- Aug 26, 2018
- 5 min
Daniel Updates 8/26/2018
Daniel has had a tough six weeks. He was born on Saturday, July 14th. He had the pulmonary bands surgery on Friday, July 20th. He started...
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Staci Geiger
- Aug 14, 2018
- 5 min
What is my role in all of this?
For the last couple of days, I have really been struggling with trying to figure out the question, What exactly am I supposed to do??...
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